The burden on parents of caring for a chronically ill child at home can be very heavy. Factors that can contribute to making caregiving challenging include:

​

•  Time and Energy Expenditure: Caring for a chronically ill child often requires around-the-clock attention and care. Parents may have to give up work or other commitments to meet their child's needs.​

•  Emotional Distress: Parents can often feel very anxious and stressed when caring for a sick child. They may worry that their child is suffering, that they are not doing enough to help, or that they are unable to handle the caregiving.